All or Nothing

Hello Friends

First, for those who signed the Parkinson's petition I shared, Thank You.  Here is a transcript of the debate.  It's a start.

Parkinson's Charter Debate

It's that time of year again when ICAD takes over my desk.

I am not following the prompts.  Here's the first few days

Title Card

1/61 mixed media collage using some very pretty paper that was wrapped around some Easter eggs.  I did two slightly different versions.

2/61

Mixed media incorporating an ATC and Nuvo drops

3/61  Made using up scraps from a previous project

4/61 Mixed media incorporating an ATC. photo does not do justice to the vibrant colours or the gilding wax 

It's not easy this year and with the unpredictable nature of Parkinson's I know each card might be the last I can manage.  Then again, I could go on for months, even years, being able to do art. That's the nature of the beast.

Since I last wrote things have changed. Here's a quick update. As I told you my medication was changed. I had a consultation with the doctor on May the 6th. On May 9th he wrote to my GP. It took until may the 28th for the GP to get back to me regarding the letter. in the meantime, I had already changed my regime based on what we had discussed. The GP was way behind and having to play catch up.  Then just this last week, I've had another phone call, my Parkinson's doctor is tweaking my medication again. Is this going to take another month now before my GP catches up?

Finally, a care package has been put in place.  The agency started with me last week. I have one hours help a day. However, I am to be reassessed for more help up to three more hours a day.  

I have lost count now of how many people have been sent by the council to assess my bathroom. I am entitled to a grant for conversion, and every little, no matter how little helps.  It's just taking forever!

Suddenly, after months, even up to a couple of years, of frustration and waiting, I've got people throwing themselves at me from all directions now.  Carers, cleaners, general help and companions. It's an all or nothing situation.  My head is in a spin!

Until next time

Debbie xx